ID

16027

Description

NINDS Common Data Elements, Multiple Sclerosis Behavioral History Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

Link

https://www.commondataelements.ninds.nih.gov/

Keywords

  1. 6/26/16 6/26/16 -
Uploaded on

June 26, 2016

DOI

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License

Creative Commons BY-NC 3.0

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NINDS CDE Behavioral History Multiple Sclerosis

Behavioral History

  1. StudyEvent: ODM
    1. Behavioral History
General Information
Description

General Information

Alias
UMLS CUI-1
C1508263
Study ID
Description

Study ID

Data type

integer

Alias
UMLS CUI [1]
C2826693
Study site name
Description

Study site name

Data type

text

Alias
UMLS CUI [1]
C2825164
Subject ID
Description

Subject ID

Data type

integer

Alias
UMLS CUI [1]
C2348585
Date behavioral history taken
Description

Date

Data type

date

Alias
UMLS CUI [1,1]
C0011008
UMLS CUI [1,2]
C2135982
Smoking History
Description

Smoking History

Alias
UMLS CUI-1
C1519384
1) Current tobacco use? (Regular use of cigarettes, cigars, chewing tobacco or pipes within past year)
Description

Current tobacco use

Data type

text

Alias
UMLS CUI [1]
C0543414
2) Past tobacco use? (Regular use of cigarettes, cigars, chewing tobacco or pipes prior to the past year)
Description

Past tobacco use

Data type

text

Alias
UMLS CUI [1]
C1519384
3) Age started tobacco use: (please specify) years (Skip if Q1 and Q2 are both NO)
Description

Age started tobacco use

Data type

integer

Alias
UMLS CUI [1]
C2827019
4) Age stopped tobacco use: N/A – still using tobacco (Skip if Q1 and Q2 are both NO)
Description

Age stopped tobacco use

Data type

integer

Measurement units
  • years
Alias
UMLS CUI [1]
C2827008
years
5) Type(s) of tobacco used: (Choose all that apply)
Description

Type(s) of tobacco used

Data type

text

Alias
UMLS CUI [1]
C3166496
6) Average number of cigarettes smoked per day: (Skip if cigarettes is NOT an answer in Q5)
Description

Average number of cigarettes smoked per day

Data type

text

Alias
UMLS CUI [1]
C1608325
Alcohol History
Description

Alcohol History

Alias
UMLS CUI-1
C0552479
1) Current drinker? (Consumed at least one drink within past year)
Description

Current drinker

Data type

text

Alias
UMLS CUI [1]
C0552479
2) Past drinker? (Consumed at least one drink prior to the past year
Description

Past drinker

Data type

text

Alias
UMLS CUI [1]
C0552479
3) Age started drinking: (please specify) years (Skip if Q1 and Q2 are both NO)
Description

Age started drinking

Data type

integer

Alias
UMLS CUI [1]
C2827019
4) Age quit drinking: (please specify) years N/A – still drinking alcohol (Skip if Q1 and Q2 are both NO)
Description

Age quit drinking

Data type

integer

Alias
UMLS CUI [1]
C2827008
5) How often do you have a drink containing alcohol?
Description

How often do you have a drink containing alcohol

Data type

text

Alias
UMLS CUI [1]
C2826656
6) How many alcoholic drinks do you have on a typical day when you are drinking?
Description

How many alcoholic drinks do you have on a typical day when you are drinking

Data type

text

Alias
UMLS CUI [1]
C0551555
7) How often do you have six or more drinks on one occasion?
Description

How often do you have six or more drinks on one occasion

Data type

text

Alias
UMLS CUI [1]
C3698589
8) Have you ever been hospitalized for an alcohol-related problem? (e.g., esophageal varices, delirium tremens (DTs), cirrhosis, etc.)
Description

Have you ever been hospitalized for an alcohol-related problem

Data type

text

Alias
UMLS CUI [1,1]
C0184666
UMLS CUI [1,2]
C0848950
Drug History
Description

Drug History

Alias
UMLS CUI-1
C2239127
1) Current drug user? (Use of any illicit drug within the past year
Description

Current drug user

Data type

text

Alias
UMLS CUI [1]
C0038586
2) IF YES, specify illicit drug type(s) used: (Choose all that apply)
Description

drug type

Data type

text

Alias
UMLS CUI [1]
C0457591
If other, please specify
Description

Other

Data type

text

Alias
UMLS CUI [1]
C0205394

Similar models

Behavioral History

  1. StudyEvent: ODM
    1. Behavioral History
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
General Information
C1508263 (UMLS CUI-1)
Study ID
Item
Study ID
integer
C2826693 (UMLS CUI [1])
Study site name
Item
Study site name
text
C2825164 (UMLS CUI [1])
Subject ID
Item
Subject ID
integer
C2348585 (UMLS CUI [1])
Date
Item
Date behavioral history taken
date
C0011008 (UMLS CUI [1,1])
C2135982 (UMLS CUI [1,2])
Item Group
Smoking History
C1519384 (UMLS CUI-1)
Item
1) Current tobacco use? (Regular use of cigarettes, cigars, chewing tobacco or pipes within past year)
text
C0543414 (UMLS CUI [1])
Code List
1) Current tobacco use? (Regular use of cigarettes, cigars, chewing tobacco or pipes within past year)
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Item
2) Past tobacco use? (Regular use of cigarettes, cigars, chewing tobacco or pipes prior to the past year)
text
C1519384 (UMLS CUI [1])
Code List
2) Past tobacco use? (Regular use of cigarettes, cigars, chewing tobacco or pipes prior to the past year)
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Age started tobacco use
Item
3) Age started tobacco use: (please specify) years (Skip if Q1 and Q2 are both NO)
integer
C2827019 (UMLS CUI [1])
Age stopped tobacco use
Item
4) Age stopped tobacco use: N/A – still using tobacco (Skip if Q1 and Q2 are both NO)
integer
C2827008 (UMLS CUI [1])
Item
5) Type(s) of tobacco used: (Choose all that apply)
text
C3166496 (UMLS CUI [1])
Code List
5) Type(s) of tobacco used: (Choose all that apply)
CL Item
Filtered cigarettes (Answer Q6) (1)
CL Item
Non-filtered cigarettes (Answer Q6) (2)
CL Item
Low tar cigarettes (Answer Q6) (3)
CL Item
Cigars (4)
CL Item
Pipes (5)
CL Item
Chewing tobacco (6)
CL Item
Other, specify (7)
Item
6) Average number of cigarettes smoked per day: (Skip if cigarettes is NOT an answer in Q5)
text
C1608325 (UMLS CUI [1])
Code List
6) Average number of cigarettes smoked per day: (Skip if cigarettes is NOT an answer in Q5)
CL Item
Less than one cigarette per day (1)
CL Item
1 cigarette per day (2)
CL Item
2 to 5 cigarettes per day (3)
CL Item
6 to 15 cigarettes per day (about ½ pack) (4)
CL Item
16 to 25 cigarettes per day (about 1 pack) (5)
CL Item
26 to 35 cigarettes per day (about 1 ½ packs) (6)
CL Item
More than 35 cigarettes per day (about 2 packs or more) (7)
CL Item
Unknown (8)
Item Group
Alcohol History
C0552479 (UMLS CUI-1)
Item
1) Current drinker? (Consumed at least one drink within past year)
text
C0552479 (UMLS CUI [1])
Code List
1) Current drinker? (Consumed at least one drink within past year)
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Item
2) Past drinker? (Consumed at least one drink prior to the past year
text
C0552479 (UMLS CUI [1])
Code List
2) Past drinker? (Consumed at least one drink prior to the past year
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Age started drinking
Item
3) Age started drinking: (please specify) years (Skip if Q1 and Q2 are both NO)
integer
C2827019 (UMLS CUI [1])
Age quit drinking
Item
4) Age quit drinking: (please specify) years N/A – still drinking alcohol (Skip if Q1 and Q2 are both NO)
integer
C2827008 (UMLS CUI [1])
Item
5) How often do you have a drink containing alcohol?
text
C2826656 (UMLS CUI [1])
Code List
5) How often do you have a drink containing alcohol?
CL Item
Never (Skip to Q8) (1)
CL Item
Monthly or less (2)
CL Item
2 - 4 times/ month (3)
CL Item
2 - 3 times/ week (4)
CL Item
4 or more times/ week (5)
CL Item
Unknown (6)
Item
6) How many alcoholic drinks do you have on a typical day when you are drinking?
text
C0551555 (UMLS CUI [1])
Code List
6) How many alcoholic drinks do you have on a typical day when you are drinking?
CL Item
1 or 2  (1)
CL Item
3 or 4  (2)
CL Item
5 or 6  (3)
CL Item
7, 8, or 9  (4)
CL Item
10 or more  (5)
CL Item
Unknown (6)
Item
7) How often do you have six or more drinks on one occasion?
text
C3698589 (UMLS CUI [1])
Code List
7) How often do you have six or more drinks on one occasion?
CL Item
Never  (1)
CL Item
Less than monthly  (2)
CL Item
Monthly  (3)
CL Item
Weekly  (4)
CL Item
Daily or almost daily  (5)
CL Item
Unknown (6)
Item
8) Have you ever been hospitalized for an alcohol-related problem? (e.g., esophageal varices, delirium tremens (DTs), cirrhosis, etc.)
text
C0184666 (UMLS CUI [1,1])
C0848950 (UMLS CUI [1,2])
Code List
8) Have you ever been hospitalized for an alcohol-related problem? (e.g., esophageal varices, delirium tremens (DTs), cirrhosis, etc.)
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Item Group
Drug History
C2239127 (UMLS CUI-1)
Item
1) Current drug user? (Use of any illicit drug within the past year
text
C0038586 (UMLS CUI [1])
Code List
1) Current drug user? (Use of any illicit drug within the past year
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Item
2) IF YES, specify illicit drug type(s) used: (Choose all that apply)
text
C0457591 (UMLS CUI [1])
Code List
2) IF YES, specify illicit drug type(s) used: (Choose all that apply)
CL Item
Amphetamines (1)
CL Item
Cocaine (2)
CL Item
Inhalants (3)
CL Item
Cannabis (marijuana) (4)
CL Item
Hallucinogens (5)
CL Item
Opioids (6)
CL Item
Other, specify: (7)
Other
Item
If other, please specify
text
C0205394 (UMLS CUI [1])

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