ID

15437

Description

https://www.hope-clara.de/ The HOPE Hospice and Palliative Care Recording standard documentation is used for documentation of palliative care and as an instrument for quality assurance in pallatiave wards, hospices and oncological wards as well as in ambulatory services and palliative teams.

Link

https://www.hope-clara.de/

Keywords

Versions (1)
  1. 5/31/16 5/31/16 -
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CC BY-NC 3.0

Uploaded on

May 31, 2016

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Creative Commons BY-NC 3.0
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Palliative and Hospice Care Palliative Outcome Scale

German English

Palliative and Hospice Care Palliative Outcome Scale

1 forms  
Objective assessment
Description

Objective assessment

was the patient impaired by pain over the last 3 days?
Description

impaired by pain

Data type

integer

Alias
UMLS CUI [1,1]
C0030193
UMLS CUI [1,2]
C0221099
was the patient's overall well being impaired by other symptoms such as nausea, dyspnea, coughing or constipation over the last 3 days?
Description

overall well being

Data type

integer

Alias
UMLS CUI [1]
C3813622
was the patient worried or anxious about her/his disease or treatment over the last 3 days?
Description

worry or anxiety

Data type

integer

Alias
UMLS CUI [1]
C0233481
UMLS CUI [2]
C0003467
were the patient's relatives or friends concerned about the patient over the last 3 days?
Description

worried relatives

Data type

integer

Alias
UMLS CUI [1,1]
C0080103
UMLS CUI [1,2]
C0233481
to what extent was the patient or her/his relatives and friends informed over the last 3 days?
Description

extent of information

Data type

integer

Alias
UMLS CUI [1,1]
C1533716
UMLS CUI [1,2]
C0439792
could the patient share her/his feelings with relatives and friends over the last 3 days?
Description

share feelings

Data type

integer

Alias
UMLS CUI [1,1]
C1527305
UMLS CUI [1,2]
C0237876
over the last 3 days did you get the impression that the patient found life worth living?
Description

worth living

Data type

integer

Alias
UMLS CUI [1]
C1821525
over the last 3 days did you get the impression the patient had a positive feeling of self-worth?
Description

positive feeling of self-worth

Data type

integer

Alias
UMLS CUI [1,1]
C0518586
UMLS CUI [1,2]
C1446409
in your opinion how much time was wasted with therapy related appointments, e.g. waiting for transports, repeating of examinations?
Description

waste of time

Data type

integer

Alias
UMLS CUI [1]
C0040223
over the last 3 days, were concrete aspects of the disease e.g. financial or personal aspects addressed?
Description

concrete aspects about the disease

Data type

integer

what issues were the primary issues over the last 3 days?
Description

primary issues

Data type

text

Alias
UMLS CUI [1]
C3258059
what is the patient's current ECOG performance status?
Description

ECOG

Data type

integer

Alias
UMLS CUI [1]
C1632812
POS sum score
Description

POS sum score

Data type

integer

Alias
UMLS CUI [1]
C1515051
Subjective assessment
Description

Subjective assessment

were you impaired by pain over the last 3 days?
Description

impaired by pain

Data type

integer

Alias
UMLS CUI [1,1]
C0030193
UMLS CUI [1,2]
C0221099
was your overall well being impaired by other symptoms such as nausea, dyspnea, coughing or constipation over the last 3 days?
Description

overall well being

Data type

integer

Alias
UMLS CUI [1]
C3813622
were you worried or anxious about your disease or treatment over the last 3 days?
Description

worry or anxiety

Data type

integer

Alias
UMLS CUI [1]
C0233481
UMLS CUI [2]
C0003467
were your relatives or friends concerned about you over the last 3 days?
Description

worried relatives

Data type

integer

Alias
UMLS CUI [1,1]
C0080103
UMLS CUI [1,2]
C0233481
to what extent were you or your relatives and friends informed over the last 3 days?
Description

extent of information

Data type

integer

Alias
UMLS CUI [1,1]
C1533716
UMLS CUI [1,2]
C0439792
could you share your feelings with relatives and friends over the last 3 days?
Description

share feelings

Data type

integer

Alias
UMLS CUI [1,1]
C1527305
UMLS CUI [1,2]
C0237876
over the last 3 days did you find life worth living?
Description

worth living

Data type

integer

Alias
UMLS CUI [1]
C1821525
over the last 3 days did you have a positive feeling of self-worth?
Description

positive feeling of self-worth

Data type

integer

Alias
UMLS CUI [1,1]
C0518586
UMLS CUI [1,2]
C1446409
in your opinion how much time was wasted with therapy related appointments, e.g. waiting for transports, repeating of examinations?
Description

waste of time

Data type

integer

Alias
UMLS CUI [1]
C0040223
over the last 3 days, were concrete aspects of the disease e.g. financial or personal aspects addressed?
Description

concrete aspects about the disease

Data type

integer

what issues were the primary issues over the last 3 days?
Description

primary issues

Data type

text

Alias
UMLS CUI [1]
C3258059
how did you complete this form?
Description

form completion

Data type

integer

Alias
UMLS CUI [1,1]
C1516308
UMLS CUI [1,2]
C0205197
POS sum score
Description

POS sum score

Data type

integer

Alias
UMLS CUI [1]
C1515051
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Similar models

Palliative and Hospice Care Palliative Outcome Scale

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Objective assessment
Item
was the patient impaired by pain over the last 3 days?
integer
C0030193 (UMLS CUI [1,1])
C0221099 (UMLS CUI [1,2])
impaired by pain
Code List
was the patient impaired by pain over the last 3 days?
CL Item
no, not at all (0)
CL Item
a bit - nothing had to be done about it (1)
CL Item
moderately - small impairment by pain (2)
CL Item
strongly - activity and congnition were severely impaired (3)
CL Item
extremely strong impairment - could not think about anything else (4)
Item
was the patient's overall well being impaired by other symptoms such as nausea, dyspnea, coughing or constipation over the last 3 days?
integer
C3813622 (UMLS CUI [1])
overall well being
Code List
was the patient's overall well being impaired by other symptoms such as nausea, dyspnea, coughing or constipation over the last 3 days?
CL Item
no, not at all (0)
CL Item
a bit (1)
CL Item
moderately (2)
CL Item
severely (3)
CL Item
extremely severely (4)
Item
was the patient worried or anxious about her/his disease or treatment over the last 3 days?
integer
C0233481 (UMLS CUI [1])
C0003467 (UMLS CUI [2])
worry or anxiety
Code List
was the patient worried or anxious about her/his disease or treatment over the last 3 days?
CL Item
no, not at all (0)
CL Item
occasionally (1)
CL Item
sometimes - my concentration was occasionally impaired (2)
CL Item
most of the time - my concentration was impaired often (3)
CL Item
I cannot think about anything else - I am entirely absorbed by my worries and fears (4)
Item
were the patient's relatives or friends concerned about the patient over the last 3 days?
integer
C0080103 (UMLS CUI [1,1])
C0233481 (UMLS CUI [1,2])
worried relatives
Code List
were the patient's relatives or friends concerned about the patient over the last 3 days?
CL Item
no, not at all (0)
CL Item
occasionally (1)
CL Item
sometimes - their concentration seemed to be impaired (2)
CL Item
most of the time (3)
CL Item
yes, they seemed to be constantly worried (4)
Item
to what extent was the patient or her/his relatives and friends informed over the last 3 days?
integer
C1533716 (UMLS CUI [1,1])
C0439792 (UMLS CUI [1,2])
extent of information
Code List
to what extent was the patient or her/his relatives and friends informed over the last 3 days?
CL Item
entirely informed - I know I can ask anytime (0)
CL Item
I received information but did not fully understand (1)
CL Item
I was informed on demand - I had wished for more information (2)
CL Item
I was poorly informed - some questions were avoided (3)
CL Item
not at all (4)
Item
could the patient share her/his feelings with relatives and friends over the last 3 days?
integer
C1527305 (UMLS CUI [1,1])
C0237876 (UMLS CUI [1,2])
undefined item
Code List
could the patient share her/his feelings with relatives and friends over the last 3 days?
CL Item
yes, as much as wanted (0)
CL Item
most of the time (1)
CL Item
sometimes (2)
CL Item
occasionally (3)
CL Item
no, not at all / could not share feelings with anyone (4)
Item
over the last 3 days did you get the impression that the patient found life worth living?
integer
C1821525 (UMLS CUI [1])
undefined item
Code List
over the last 3 days did you get the impression that the patient found life worth living?
CL Item
yes, always (0)
CL Item
most of the time (1)
CL Item
sometimes (2)
CL Item
occasionally (3)
CL Item
no, not at all (4)
Item
over the last 3 days did you get the impression the patient had a positive feeling of self-worth?
integer
C0518586 (UMLS CUI [1,1])
C1446409 (UMLS CUI [1,2])
undefined item
Code List
over the last 3 days did you get the impression the patient had a positive feeling of self-worth?
CL Item
yes, always (0)
CL Item
most of the time (1)
CL Item
sometimes (2)
CL Item
occasionally (3)
CL Item
no, not at all (4)
Item
in your opinion how much time was wasted with therapy related appointments, e.g. waiting for transports, repeating of examinations?
integer
C0040223 (UMLS CUI [1])
waste of time
Code List
in your opinion how much time was wasted with therapy related appointments, e.g. waiting for transports, repeating of examinations?
CL Item
no time at all (0)
CL Item
up to half a day (2)
CL Item
more than half a day (4)
Item
over the last 3 days, were concrete aspects of the disease e.g. financial or personal aspects addressed?
integer
concrete aspects about the disease
Code List
over the last 3 days, were concrete aspects of the disease e.g. financial or personal aspects addressed?
CL Item
pratical issues were approached and were handled with my satisfaction (0)
CL Item
practical issues are handled at the moment (2)
CL Item
there are practical issues that were not approached (4)
CL Item
pratical issues were approached and were handled with my satisfaction (0)
CL Item
I did not have any pratical issues (0,0)
primary issues
Item
what issues were the primary issues over the last 3 days?
text
C3258059 (UMLS CUI [1])
Item
what is the patient's current ECOG performance status?
integer
C1632812 (UMLS CUI [1])
ECOG
Code List
what is the patient's current ECOG performance status?
CL Item
Fully Active, Able To Carry On All Pre-disease Performance Without Restriction. (0) (0)
CL Item
Restricted In Physically Strenuous Activity But Ambulatory And Able To Carry Out Work Of A Light Or Sedentary Nature, E.g., Light Housework, Office Work. (1) (1)
CL Item
Ambulatory And Capable Of All Selfcare But Unable To Carry Out Any Work Activities. Up And About More Than 50% Of Waking Hours. (2) (2)
CL Item
Capable Of Only Limited Selfcare, Confined To Bed Or Chair More Than 50% Of Waking Hours. (3) (3)
CL Item
Completely Disabled. Cannot Carry On Any Selfcare. Totally Confined To Bed Or Chair. (4) (4)
POS sum score
Item
POS sum score
integer
C1515051 (UMLS CUI [1])
Item Group
Subjective assessment
Item
were you impaired by pain over the last 3 days?
integer
C0030193 (UMLS CUI [1,1])
C0221099 (UMLS CUI [1,2])
undefined item
Code List
were you impaired by pain over the last 3 days?
CL Item
no, not at all (0)
CL Item
a bit - nothing had to be done about it (1)
CL Item
moderately - small impairment by pain (2)
CL Item
strongly - activity and congnition were severely impaired (3)
CL Item
extremely strong impairment - could not think about anything else (4)
Item
was your overall well being impaired by other symptoms such as nausea, dyspnea, coughing or constipation over the last 3 days?
integer
C3813622 (UMLS CUI [1])
overall well being
Code List
was your overall well being impaired by other symptoms such as nausea, dyspnea, coughing or constipation over the last 3 days?
CL Item
no, not at all (0)
CL Item
a bit (1)
CL Item
moderately (2)
CL Item
severely (3)
CL Item
extremely severely (4)
Item
were you worried or anxious about your disease or treatment over the last 3 days?
integer
C0233481 (UMLS CUI [1])
C0003467 (UMLS CUI [2])
worry or anxiety
Code List
were you worried or anxious about your disease or treatment over the last 3 days?
CL Item
no, not at all (0)
CL Item
occasionally (1)
CL Item
sometimes - my concentration was occasionally impaired (2)
CL Item
most of the time - my concentration was impaired often (3)
CL Item
I cannot think about anything else - I am entirely absorbed by my worries and fears (4)
Item
were your relatives or friends concerned about you over the last 3 days?
integer
C0080103 (UMLS CUI [1,1])
C0233481 (UMLS CUI [1,2])
worried relatives
Code List
were your relatives or friends concerned about you over the last 3 days?
CL Item
no, not at all (0)
CL Item
occasionally (1)
CL Item
sometimes - their concentration seemed to be impaired (2)
CL Item
most of the time (3)
CL Item
yes, they seemed to be constantly worried (4)
Item
to what extent were you or your relatives and friends informed over the last 3 days?
integer
C1533716 (UMLS CUI [1,1])
C0439792 (UMLS CUI [1,2])
extent of information
Code List
to what extent were you or your relatives and friends informed over the last 3 days?
CL Item
entirely informed - I know I can ask anytime (0)
CL Item
I received information but did not fully understand (1)
CL Item
I was informed on demand - I had wished for more information (2)
CL Item
I was poorly informed - some questions were avoided (3)
CL Item
not at all (4)
Item
could you share your feelings with relatives and friends over the last 3 days?
integer
C1527305 (UMLS CUI [1,1])
C0237876 (UMLS CUI [1,2])
undefined item
Code List
could you share your feelings with relatives and friends over the last 3 days?
CL Item
yes, as much as wanted (0)
CL Item
most of the time (1)
CL Item
sometimes (2)
CL Item
occasionally (3)
CL Item
no, not at all / could not share feelings with anyone (4)
Item
over the last 3 days did you find life worth living?
integer
C1821525 (UMLS CUI [1])
undefined item
Code List
over the last 3 days did you find life worth living?
CL Item
yes, always (0)
CL Item
most of the time (1)
CL Item
sometimes (2)
CL Item
occasionally (3)
CL Item
no, not at all (4)
Item
over the last 3 days did you have a positive feeling of self-worth?
integer
C0518586 (UMLS CUI [1,1])
C1446409 (UMLS CUI [1,2])
undefined item
Code List
over the last 3 days did you have a positive feeling of self-worth?
CL Item
yes, always (0)
CL Item
most of the time (1)
CL Item
sometimes (2)
CL Item
occasionally (3)
CL Item
no, not at all (4)
Item
in your opinion how much time was wasted with therapy related appointments, e.g. waiting for transports, repeating of examinations?
integer
C0040223 (UMLS CUI [1])
waste of time
Code List
in your opinion how much time was wasted with therapy related appointments, e.g. waiting for transports, repeating of examinations?
CL Item
no time at all (0)
CL Item
up to half a day (2)
CL Item
more than half a day (4)
Item
over the last 3 days, were concrete aspects of the disease e.g. financial or personal aspects addressed?
integer
concrete aspects about the disease
Code List
over the last 3 days, were concrete aspects of the disease e.g. financial or personal aspects addressed?
CL Item
pratical issues were approached and were handled with my satisfaction (0)
CL Item
practical issues are handled at the moment (2)
CL Item
there are practical issues that were not approached (4)
CL Item
pratical issues were approached and were handled with my satisfaction (0)
CL Item
I did not have any pratical issues (0,0)
primary issues
Item
what issues were the primary issues over the last 3 days?
text
C3258059 (UMLS CUI [1])
Item
how did you complete this form?
integer
C1516308 (UMLS CUI [1,1])
C0205197 (UMLS CUI [1,2])
form completion
Code List
how did you complete this form?
CL Item
by myself (0)
CL Item
with the help of a friend or relative (1)
CL Item
with the help of the staff (2)
POS sum score
Item
POS sum score
integer
C1515051 (UMLS CUI [1])
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