ID

14885

Description

https://www.hope-clara.de/ The HOPE Hospice and Palliative Care Recording standard documentation is used for documentation of palliative care and as an instrument for quality assurance in pallatiave wards, hospices and oncological wards as well as in ambulatory services and palliative teams.

Link

https://www.hope-clara.de/

Keywords

Versions (2)
  1. 5/4/16 5/4/16 -
  2. 3/15/21 3/15/21 - Dr. rer. medic Philipp Neuhaus
Copyright Holder

CC BY-NC 3.0

Uploaded on

May 4, 2016

DOI

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License

Creative Commons BY-NC 3.0
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Palliative and Hospice Care Relatives Satisfaction

German English

Palliative and Hospice Care Relatives Satisfaction

1 forms  
First meeting before start of therapy
Description

First meeting before start of therapy

At the first meeting before the start of the therapy we knew who the contact person was for further contact
Description

contact person

Data type

integer

Alias
UMLS CUI [1]
C0337611
At the first meeting before the start of the therapy our contact person had sufficient time for us
Description

sufficient time

Data type

integer

Alias
UMLS CUI [1,1]
C0040223
UMLS CUI [1,2]
C0205410
At the first meeting before the start of the therapy we received understandable answers to our questions
Description

understandable answers

Data type

integer

Alias
UMLS CUI [1]
C1822370
start of therapy
Description

start of therapy

Alias
UMLS CUI-1
C1531783
at the beginning of the assistance the contact persons were well prepared for us
Description

contact person was well prepared

Data type

integer

Alias
UMLS CUI [1,1]
C0439659
UMLS CUI [1,2]
C1521721
UMLS CUI [2,1]
C0337611
UMLS CUI [2,2]
C1998726
at the beginning of the assistance the staff had sufficient time for us
Description

sufficient time

Data type

integer

Alias
UMLS CUI [1,1]
C0439659
UMLS CUI [1,2]
C1521721
UMLS CUI [2,1]
C0040223
UMLS CUI [2,2]
C0205410
at the beginning of the assistance the staff explained us everything (regarding formalities, the housing facility and the daily routine)
Description

explanation

Data type

integer

Alias
UMLS CUI [1,1]
C0439659
UMLS CUI [1,2]
C1521721
UMLS CUI [2]
C0681841
symptoms and other issues
Description

symptoms and other issues

the patient's physical pain was treated competently
Description

pain

Data type

integer

Alias
UMLS CUI [1,1]
C0030193
UMLS CUI [1,2]
C0087111
UMLS CUI [1,3]
C0086035
other physical issues (e.g. nausea, emesis, dyspnea) were treated competently
Description

other physical issues

Data type

integer

Alias
UMLS CUI [1,1]
C0683323
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0087111
UMLS CUI [1,4]
C0086035
Information and time
Description

Information and time

Our relative / we were understandably and sufficiently informed about therapy options (chances and limits, side effects)
Description

therapy option

Data type

integer

Alias
UMLS CUI [1]
C0510365
Our relative / we were understandably and sufficiently informed about nursing procedures
Description

nursing procedures

Data type

integer

Alias
UMLS CUI [1]
C0204636
when we needed them the doctors had sufficient time
Description

doctors time

Data type

integer

Alias
UMLS CUI [1,1]
C1710470
UMLS CUI [1,2]
C0040223
UMLS CUI [1,3]
C0205410
when we needed them the nurses had sufficient time
Description

nurses time

Data type

integer

Alias
UMLS CUI [1,1]
C0028661
UMLS CUI [1,2]
C0040223
UMLS CUI [1,3]
C0205410
when we needed them the other therapists (psychological therapists, physical therapists) had sufficient time
Description

other therapists time

Data type

integer

Alias
UMLS CUI [1,1]
C0871525
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0040223
UMLS CUI [1,4]
C0205410
when we needed them voluntary workers had sufficient time
Description

voluntary workers time

Data type

integer

Alias
UMLS CUI [1,1]
C0042960
UMLS CUI [1,2]
C0040223
UMLS CUI [1,3]
C0205410
Expertise and support
Description

Expertise and support

the doctors were competent in supporting or treating our relative
Description

Doctors expertise

Data type

integer

Alias
UMLS CUI [1,1]
C0031831
UMLS CUI [1,2]
C0870520
the nurses were competent in supporting or treating our relative
Description

nurses expertise

Data type

integer

Alias
UMLS CUI [1,1]
C0028661
UMLS CUI [1,2]
C0870520
the other therapists (psychological therapists, physical therapist) were competent in supporting or treating our relative
Description

other therapists expertise

Data type

integer

Alias
UMLS CUI [1,1]
C0871525
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0870520
the voluntary workers were competent in supporting or treating our relative
Description

voluntary workers expertise

Data type

integer

Alias
UMLS CUI [1,1]
C0042960
UMLS CUI [1,2]
C0870520
Our relative / we received helpful support in mentally difficult times, in questions about the meaning of life/suffering/death, in spiritual questions
Description

mental support

Data type

integer

Alias
UMLS CUI [1,1]
C3693635
UMLS CUI [1,2]
C0150355
Our relative's needs were taken care of, e.g. requests for food, requests for individual daily routine (wake-up-times, meal times), decisions regarding the therapy and/or visiting hours
Description

patient needs

Data type

integer

Alias
UMLS CUI [1]
C0686904
UMLS CUI [2]
C0016452
UMLS CUI [3]
C0562339
UMLS CUI [4,1]
C0679006
UMLS CUI [4,2]
C0087111
UMLS CUI [5]
C1547409
After patient death
Description

After patient death

We were informed about our relative's imminent death early enough so that we were not surprised by it
Description

early information on the patients death

Data type

integer

Alias
UMLS CUI [1,1]
C1306577
UMLS CUI [1,2]
C1533716
UMLS CUI [1,3]
C1279919
Our relative was treated with dignity after his/her death
Description

dignity after death

Data type

integer

Alias
UMLS CUI [1,1]
C0011070
UMLS CUI [1,2]
C0001758
We had enough time to bid farewell
Description

time for farewell

Data type

integer

Alias
UMLS CUI [1]
C0040223
We had sufficient mental support after our relative's death
Description

Mental support

Data type

integer

Alias
UMLS CUI [1,1]
C3693635
UMLS CUI [1,2]
C1306577
We received information about further support
Description

information about further support

Data type

integer

Alias
UMLS CUI [1,1]
C1533716
UMLS CUI [1,2]
C0344211
We felt comforted during the time following our relative's death
Description

comfort

Data type

integer

Alias
UMLS CUI [1]
C1331418
What helped you most or what did you like best?
Description

satisfaction assessment

Data type

text

Alias
UMLS CUI [1]
C0242428
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Similar models

Palliative and Hospice Care Relatives Satisfaction

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
First meeting before start of therapy
Item
At the first meeting before the start of the therapy we knew who the contact person was for further contact
integer
C0337611 (UMLS CUI [1])
contact person
Code List
At the first meeting before the start of the therapy we knew who the contact person was for further contact
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item
At the first meeting before the start of the therapy our contact person had sufficient time for us
integer
C0040223 (UMLS CUI [1,1])
C0205410 (UMLS CUI [1,2])
undefined item
Code List
At the first meeting before the start of the therapy our contact person had sufficient time for us
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item
At the first meeting before the start of the therapy we received understandable answers to our questions
integer
C1822370 (UMLS CUI [1])
Understandable answers
Code List
At the first meeting before the start of the therapy we received understandable answers to our questions
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item Group
start of therapy
C1531783 (UMLS CUI-1)
Item
at the beginning of the assistance the contact persons were well prepared for us
integer
C0439659 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
C0337611 (UMLS CUI [2,1])
C1998726 (UMLS CUI [2,2])
contact person was well prepared
Code List
at the beginning of the assistance the contact persons were well prepared for us
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item
at the beginning of the assistance the staff had sufficient time for us
integer
C0439659 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
C0040223 (UMLS CUI [2,1])
C0205410 (UMLS CUI [2,2])
sufficient time
Code List
at the beginning of the assistance the staff had sufficient time for us
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item
at the beginning of the assistance the staff explained us everything (regarding formalities, the housing facility and the daily routine)
integer
C0439659 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
C0681841 (UMLS CUI [2])
explanation
Code List
at the beginning of the assistance the staff explained us everything (regarding formalities, the housing facility and the daily routine)
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item Group
symptoms and other issues
Item
the patient's physical pain was treated competently
integer
C0030193 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
C0086035 (UMLS CUI [1,3])
pain
Code List
the patient's physical pain was treated competently
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item
other physical issues (e.g. nausea, emesis, dyspnea) were treated competently
integer
C0683323 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
C0086035 (UMLS CUI [1,4])
other physical issues
Code List
other physical issues (e.g. nausea, emesis, dyspnea) were treated competently
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item Group
Information and time
Item
Our relative / we were understandably and sufficiently informed about therapy options (chances and limits, side effects)
integer
C0510365 (UMLS CUI [1])
therapy option
Code List
Our relative / we were understandably and sufficiently informed about therapy options (chances and limits, side effects)
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item
Our relative / we were understandably and sufficiently informed about nursing procedures
integer
C0204636 (UMLS CUI [1])
nursing procedures
Code List
Our relative / we were understandably and sufficiently informed about nursing procedures
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item
when we needed them the doctors had sufficient time
integer
C1710470 (UMLS CUI [1,1])
C0040223 (UMLS CUI [1,2])
C0205410 (UMLS CUI [1,3])
doctors time
Code List
when we needed them the doctors had sufficient time
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item
when we needed them the nurses had sufficient time
integer
C0028661 (UMLS CUI [1,1])
C0040223 (UMLS CUI [1,2])
C0205410 (UMLS CUI [1,3])
nurses time
Code List
when we needed them the nurses had sufficient time
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item
when we needed them the other therapists (psychological therapists, physical therapists) had sufficient time
integer
C0871525 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0040223 (UMLS CUI [1,3])
C0205410 (UMLS CUI [1,4])
other therapists time
Code List
when we needed them the other therapists (psychological therapists, physical therapists) had sufficient time
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item
when we needed them voluntary workers had sufficient time
integer
C0042960 (UMLS CUI [1,1])
C0040223 (UMLS CUI [1,2])
C0205410 (UMLS CUI [1,3])
voluntary workers time
Code List
when we needed them voluntary workers had sufficient time
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item Group
Expertise and support
Item
the doctors were competent in supporting or treating our relative
integer
C0031831 (UMLS CUI [1,1])
C0870520 (UMLS CUI [1,2])
Doctors expertise
Code List
the doctors were competent in supporting or treating our relative
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item
the nurses were competent in supporting or treating our relative
integer
C0028661 (UMLS CUI [1,1])
C0870520 (UMLS CUI [1,2])
nurses expertise
Code List
the nurses were competent in supporting or treating our relative
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item
the other therapists (psychological therapists, physical therapist) were competent in supporting or treating our relative
integer
C0871525 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0870520 (UMLS CUI [1,3])
other therapists expertise
Code List
the other therapists (psychological therapists, physical therapist) were competent in supporting or treating our relative
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item
the voluntary workers were competent in supporting or treating our relative
integer
C0042960 (UMLS CUI [1,1])
C0870520 (UMLS CUI [1,2])
voluntary workers expertise
Code List
the voluntary workers were competent in supporting or treating our relative
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item
Our relative / we received helpful support in mentally difficult times, in questions about the meaning of life/suffering/death, in spiritual questions
integer
C3693635 (UMLS CUI [1,1])
C0150355 (UMLS CUI [1,2])
mental support
Code List
Our relative / we received helpful support in mentally difficult times, in questions about the meaning of life/suffering/death, in spiritual questions
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item
Our relative's needs were taken care of, e.g. requests for food, requests for individual daily routine (wake-up-times, meal times), decisions regarding the therapy and/or visiting hours
integer
C0686904 (UMLS CUI [1])
C0016452 (UMLS CUI [2])
C0562339 (UMLS CUI [3])
C0679006 (UMLS CUI [4,1])
C0087111 (UMLS CUI [4,2])
C1547409 (UMLS CUI [5])
patient needs
Code List
Our relative's needs were taken care of, e.g. requests for food, requests for individual daily routine (wake-up-times, meal times), decisions regarding the therapy and/or visiting hours
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item Group
After patient death
Item
We were informed about our relative's imminent death early enough so that we were not surprised by it
integer
C1306577 (UMLS CUI [1,1])
C1533716 (UMLS CUI [1,2])
C1279919 (UMLS CUI [1,3])
undefined item
Code List
We were informed about our relative's imminent death early enough so that we were not surprised by it
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item
Our relative was treated with dignity after his/her death
integer
C0011070 (UMLS CUI [1,1])
C0001758 (UMLS CUI [1,2])
undefined item
Code List
Our relative was treated with dignity after his/her death
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item
We had enough time to bid farewell
integer
C0040223 (UMLS CUI [1])
undefined item
Code List
We had enough time to bid farewell
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item
We had sufficient mental support after our relative's death
integer
C3693635 (UMLS CUI [1,1])
C1306577 (UMLS CUI [1,2])
undefined item
Code List
We had sufficient mental support after our relative's death
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item
We received information about further support
integer
C1533716 (UMLS CUI [1,1])
C0344211 (UMLS CUI [1,2])
undefined item
Code List
We received information about further support
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
Item
We felt comforted during the time following our relative's death
integer
C1331418 (UMLS CUI [1])
undefined item
Code List
We felt comforted during the time following our relative's death
CL Item
strongly agree (1)
CL Item
agree (2)
CL Item
neutral (3)
CL Item
disagree (4)
CL Item
strongly disagree (5)
satisfaction assessment
Item
What helped you most or what did you like best?
text
C0242428 (UMLS CUI [1])
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