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SECTION 6A: Family Centered Care and Shared Decision Making

14 forms  
SECTION 6A: Family Centered Care and Shared Decision Making
Description

SECTION 6A: Family Centered Care and Shared Decision Making

Did (S.C.) visit any doctors or other health care providers?
Description

ONLY ASKED FOR CHILDREN WHO REPORTED USING LESS THAN 1 SERVICE IN THE PAST 12 MONTHS ON QUESTIONS C4Q05_1A THROUGH C4Q05_10A, C4Q05_2C THROUGH C4Q05_10C, K4Q20, AND K4Q21

Data type

integer

Alias
UMLS CUI [1,1]
C0545082
UMLS CUI [1,2]
C0018747
received 1 or more of the following services
Description

received 1 or more of the following services

(During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth), how often did (S.C.)’s doctors and other health care providers spend enough time with (him/her)? Would you say never, sometimes, usually, or always?
Description

[NOTE: Asked of respondents whose children received one or more of the following services in the past 12 months: C4Q05_1A THROUGH C4Q05_10A, C4Q05_2C THROUGH C4Q05_10C, K4Q20, AND K4Q21.]

Data type

integer

Alias
UMLS CUI [1,1]
C0871208
UMLS CUI [1,2]
C0031831
UMLS CUI [1,3]
C0515862
(During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth), how often did (S.C.)’s doctors and other health care providers listen carefully to you? Would you say never, sometimes, usually, or always?
Description

[NOTE: Asked of respondents whose children received one or more of the following services in the past 12 months: C4Q05_1A THROUGH C4Q05_10A, C4Q05_2C THROUGH C4Q05_10C, K4Q20, AND K4Q21.]

Data type

integer

Alias
UMLS CUI [1,1]
C0871208
UMLS CUI [1,2]
C0031831
UMLS CUI [1,3]
C0512727
When (S.C.) is seen by doctors or other health care providers, how often are they sensitive to your family’s values and customs? Would you say never, sometimes, usually, or always?
Description

[NOTE: Asked of respondents whose children received one or more of the following services in the past 12 months: C4Q05_1A THROUGH C4Q05_10A, C4Q05_2C THROUGH C4Q05_10C, K4Q20, AND K4Q21.]

Data type

integer

Alias
UMLS CUI [1,1]
C0031831
UMLS CUI [1,2]
C0508111
Information about a child’s health or health care can include things such as the causes of any health problems, how to care for a child now, and what changes to expect in the future. [During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], how often did you get the specific information you needed from (S.C.)’s doctors and other health care providers? Would you say never, sometimes, usually, or always?
Description

[NOTE: Asked of respondents whose children received one or more of the following services in the past 12 months: C4Q05_1A THROUGH C4Q05_10A, C4Q05_2C THROUGH C4Q05_10, K4Q20, AND K4Q21.]

Data type

integer

Alias
UMLS CUI [1]
C1998726
(During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth), how often did (S.C.)’s doctors or other health care providers help you feel like a partner in (his/her) care? Would you say never, sometimes, usually, or always?
Description

[NOTE: Asked of respondents whose children received one or more of the following services in the past 12 months: C4Q05_1A THROUGH C4Q05_10A, C4Q05_2C THROUGH C4Q05_10C, K4Q20, AND K4Q21.]

Data type

integer

Alias
UMLS CUI [1,1]
C3259928
UMLS CUI [1,2]
C0496675
We want to know about how [S.C.]’s doctors or other health care providers work with you to make decisions about [his/her] health care services and treatment. [During the past 12 months/ Since [his/her] birth], how often did [S.C.]’s doctors or other health care providers discuss with you the range of options to consider for [his/her] health care or treatment? Would you say never, sometimes, usually, or always?
Description

[NOTE: Asked of respondents whose children received one or more of the following services in the past 12 months: C4Q05_1A THROUGH C4Q05_10A, C4Q05_2C THROUGH C4Q05_10C, K4Q20, AND K4Q21.]

Data type

integer

Alias
UMLS CUI [1,1]
C0031831
UMLS CUI [1,2]
C0510365
How often did they encourage you to ask questions or raise concerns?
Description

[NOTE: Asked of respondents whose children received one or more of the following services in the past 12 months: C4Q05_1A THROUGH C4Q05_10A, C4Q05_2C THROUGH C4Q05_10C, K4Q20, AND K4Q21.] We want to know about how [S.C.]’s doctors or other health care providers work with you to make decisions about [his/her] health care services and treatment.

Data type

integer

Alias
UMLS CUI [1,1]
C0510820
How often did they make it easy for you to ask questions or raise concerns?
Description

[NOTE: Asked of respondents whose children received one or more of the following services in the past 12 months: C4Q05_1A THROUGH C4Q05_10A, C4Q05_2C THROUGH C4Q05_10C, K4Q20, AND K4Q21.] We want to know about how [S.C.]’s doctors or other health care providers work with you to make decisions about [his/her] health care services and treatment.

Data type

integer

Alias
UMLS CUI [1,1]
C3481577
UMLS CUI [1,2]
C0332219
How often did they consider and respect what health care and treatment choices you thought would work best for (S.C.)?
Description

[NOTE: Asked of respondents whose children received one or more of the following services in the past 12 months: C4Q05_1A THROUGH C4Q05_10A, C4Q05_2C THROUGH C4Q05_10, K4Q20, AND K4Q21.]

Data type

integer

Alias
UMLS CUI [1,1]
C0750591
UMLS CUI [1,2]
C0031831
UMLS CUI [1,3]
C0030551
UMLS CUI [1,4]
C0871010
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SECTION 6A: Family Centered Care and Shared Decision Making

14 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
SECTION 6A: Family Centered Care and Shared Decision Making
C6Q01
Item
Did (S.C.) visit any doctors or other health care providers?
integer
C0545082 (UMLS CUI [1,1])
C0018747 (UMLS CUI [1,2])
Item Group
received 1 or more of the following services
C6Q02
Item
(During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth), how often did (S.C.)’s doctors and other health care providers spend enough time with (him/her)? Would you say never, sometimes, usually, or always?
integer
C0871208 (UMLS CUI [1,1])
C0031831 (UMLS CUI [1,2])
C0515862 (UMLS CUI [1,3])
C6Q03
Item
(During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth), how often did (S.C.)’s doctors and other health care providers listen carefully to you? Would you say never, sometimes, usually, or always?
integer
C0871208 (UMLS CUI [1,1])
C0031831 (UMLS CUI [1,2])
C0512727 (UMLS CUI [1,3])
C6Q04
Item
When (S.C.) is seen by doctors or other health care providers, how often are they sensitive to your family’s values and customs? Would you say never, sometimes, usually, or always?
integer
C0031831 (UMLS CUI [1,1])
C0508111 (UMLS CUI [1,2])
C6Q05
Item
Information about a child’s health or health care can include things such as the causes of any health problems, how to care for a child now, and what changes to expect in the future. [During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], how often did you get the specific information you needed from (S.C.)’s doctors and other health care providers? Would you say never, sometimes, usually, or always?
integer
C1998726 (UMLS CUI [1])
C6Q06
Item
(During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth), how often did (S.C.)’s doctors or other health care providers help you feel like a partner in (his/her) care? Would you say never, sometimes, usually, or always?
integer
C3259928 (UMLS CUI [1,1])
C0496675 (UMLS CUI [1,2])
C6Q21
Item
We want to know about how [S.C.]’s doctors or other health care providers work with you to make decisions about [his/her] health care services and treatment. [During the past 12 months/ Since [his/her] birth], how often did [S.C.]’s doctors or other health care providers discuss with you the range of options to consider for [his/her] health care or treatment? Would you say never, sometimes, usually, or always?
integer
C0031831 (UMLS CUI [1,1])
C0510365 (UMLS CUI [1,2])
C6Q22
Item
How often did they encourage you to ask questions or raise concerns?
integer
C0510820 (UMLS CUI [1,1])
C6Q23
Item
How often did they make it easy for you to ask questions or raise concerns?
integer
C3481577 (UMLS CUI [1,1])
C0332219 (UMLS CUI [1,2])
C6Q24
Item
How often did they consider and respect what health care and treatment choices you thought would work best for (S.C.)?
integer
C0750591 (UMLS CUI [1,1])
C0031831 (UMLS CUI [1,2])
C0030551 (UMLS CUI [1,3])
C0871010 (UMLS CUI [1,4])
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