English

SECTION 5: Care Coordination

14 forms  
SECTION 5: Care Coordination
Description

SECTION 5: Care Coordination

Did (S.C.) use any other health-related medical, educational, or social services [in the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] since (his/her) birth]?
Description

ONLY ASKED FOR CHILDREN WHO REPORTED USING LESS THAN 2 SERVICES ON QUESTIONS K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, AND C3Q15 READ IF NECESSARY: There are many types of services children might use to improve their education, their health, or their well-being. We listed 15 of these services earlier, but there could be others that your child uses.

Data type

integer

Alias
UMLS CUI [1,1]
C0199168
UMLS CUI [1,2]
C3843288
UMLS CUI [2,1]
C1553069
UMLS CUI [2,2]
C3843288
(During the past 12 months/ Since (his/her) birth), did (S.C.) need a referral to see any doctors or receive any services?
Description

C5Q11

Data type

integer

Alias
UMLS CUI [1,1]
C0034927
UMLS CUI [1,2]
C3843288
Was getting referrals a big problem, a small problem, or not a problem?
Description

NOTE: Only children with YES to needing a referral

Data type

integer

Alias
UMLS CUI [1,1]
C0034927
UMLS CUI [1,2]
C0033213
If child received two or more of the following services in the past 12 months (questions K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, and C5Q01):
Description

If child received two or more of the following services in the past 12 months (questions K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, and C5Q01):

Does anyone help you arrange or coordinate (S.C.)’s care among the different doctors or services that (he/she) uses?
Description

[NOTE: ONLY ASKED IF CHILD RECEIVED TWO OR MORE OF THE FOLLOWING SERVICES IN THE PAST 12 MONTHS: K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, AND C5Q01] READ IF NECESSARY: By "arrange or coordinate," I mean: Is there anyone who helps you make sure that (S.C.) gets all the health care and services (he/she) needs, that health care providers share information, and that these services fit together and are paid for in a way that works for you? READ IF NECESSARY: Anyone means anyone.

Data type

integer

Alias
UMLS CUI [1,1]
C1269765
UMLS CUI [1,2]
C0422343
Does a doctor or someone in a doctor’s office provide this help arranging or coordinating (S.C.)’s care?
Description

[NOTE: ONLY ASKED IF CHILD RECEIVED TWO OR MORE OF THE FOLLOWING SERVICES IN THE PAST 12 MONTHS: K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, AND C5Q01] NOTE: Only children with YES to help coordinating care

Data type

integer

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C0025099
Is there anyone else who helps arrange or coordinate (S.C.)'s care?
Description

[NOTE: ONLY ASKED IF CHILD RECEIVED TWO OR MORE OF THE FOLLOWING SERVICES IN THE PAST 12 MONTHS: K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, AND C5Q01] Note: Only children with YES to help coordinating care and YES to doctor or someone is doctor's office providing help

Data type

integer

Alias
UMLS CUI [1,1]
C1269765
UMLS CUI [1,2]
C0422343
[IF C5Q13=01, DISPLAY] Is this person a parent, guardian, other family member, friend, nurse, therapist, social worker, hospital discharge planner, case manager, or someone else? [IF C5Q13=02,77,99, THEN DISPLAY] Who does provide help arranging or coordinating [S.C.]'s care? A parent, guardian, other family member, friend, nurse, therapist, social worker, hospital discharge planner, case manager, or someone else?
Description

[IF C5Q13=01, DISPLAY] Is this person a parent, guardian, other family member, friend, nurse, therapist, social worker, hospital discharge planner, case manager, or someone else? [IF C5Q13=02,77,99, THEN DISPLAY] Who does provide help arranging or coordinating [S.C.]'s care? A parent, guardian, other family member, friend, nurse, therapist, social worker, hospital discharge planner, case manager, or someone else?

Alias
UMLS CUI-1
C0422343
UMLS CUI-2
C1269765
PARENT
Description

C5Q16_1

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C0030551
GUARDIAN
Description

C5Q16_2

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C1274041
OTHER FAMILY MEMBER
Description

C5Q16_3

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C3845474
FRIEND
Description

C5Q16_4

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C0079382
NURSE
Description

C5Q16_5

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C0028661
THERAPIST
Description

C5Q16_6

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C0871525
SOCIAL WORKER
Description

C5Q16_7

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C0037444
HOSPITAL DISCHARGE PLANNER
Description

C5Q16_8

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C0374894
CASE MANAGER
Description

C5Q16_9

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C0687694
SOMEONE AT CHILD'S SCHOOL
Description

C5Q16_10

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C0036375
UMLS CUI [1,4]
C0599987
SOMEONE ELSE
Description

C5Q16_11

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C0027361
DON'T KNOW DON'T KNOW
Description

C5Q16_77

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C3840856
REFUSED
Description

C5Q16_99

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C3844811
If child received two or more of the following services in the past 12 months (questions K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, and C5Q01):
Description

If child received two or more of the following services in the past 12 months (questions K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, and C5Q01):

(During the past 12 months/ Since (his/her) birth), have you felt that you could have used extra help arranging or coordinating (S.C.)’s care among these different health care providers or services?
Description

[NOTE: ONLY ASKED IF CHILD RECEIVED TWO OR MORE OF THE FOLLOWING SERVICES IN THE PAST 12 MONTHS: K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, AND C5Q01]

Data type

integer

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C0205172
UMLS CUI [1,4]
C3843288
(During the past 12 months/ Since (his/her) birth), how often did you get as much help as you wanted with arranging or coordinating (S.C.)’s care? Would you say never, sometimes, or usually?
Description

[NOTE: ONLY ASKED IF CHILD RECEIVED TWO OR MORE OF THE FOLLOWING SERVICES IN THE PAST 12 MONTHS: K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, AND C5Q01] NOTE: Only children with YES to extra help with coordinating care

Data type

integer

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C0871208
Overall, are you very satisfied, somewhat satisfied, somewhat dissatisfied, or very dissatisfied with the communication among (S.C.)’s doctors and other health care providers?
Description

[NOTE: ONLY ASKED IF CHILD RECEIVED TWO OR MORE OF THE FOLLOWING SERVICES IN THE PAST 12 MONTHS: K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, AND C5Q01]

Data type

integer

Alias
UMLS CUI [1,1]
C0242428
UMLS CUI [1,2]
C0009452
Do (S.C.)’s doctors or other health care providers need to communicate with (his/her) school, early intervention program, child care providers, vocational education or rehabilitation program?
Description

[NOTE: ONLY ASKED IF CHILD RECEIVED TWO OR MORE OF THE FOLLOWING SERVICES IN THE PAST 12 MONTHS: K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, AND C5Q01]

Data type

integer

Alias
UMLS CUI [1,1]
C0031831
UMLS CUI [1,2]
C1705415
UMLS CUI [1,3]
C0018747
Overall, are you very satisfied, somewhat satisfied, somewhat dissatisfied, or very dissatisfied with that communication?
Description

[NOTE: ONLY ASKED IF CHILD RECEIVED TWO OR MORE OF THE FOLLOWING SERVICES IN THE PAST 12 MONTHS: K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, AND C5Q01] Note: Only children with YES to doctors communicating with school

Data type

integer

Alias
UMLS CUI [1,1]
C0242428
UMLS CUI [1,2]
C0009452
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Similar models

SECTION 5: Care Coordination

14 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
SECTION 5: Care Coordination
C5Q01
Item
Did (S.C.) use any other health-related medical, educational, or social services [in the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] since (his/her) birth]?
integer
C0199168 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
C1553069 (UMLS CUI [2,1])
C3843288 (UMLS CUI [2,2])
C5Q11
Item
(During the past 12 months/ Since (his/her) birth), did (S.C.) need a referral to see any doctors or receive any services?
integer
C0034927 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
C4Q07
Item
Was getting referrals a big problem, a small problem, or not a problem?
integer
C0034927 (UMLS CUI [1,1])
C0033213 (UMLS CUI [1,2])
Item Group
If child received two or more of the following services in the past 12 months (questions K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, and C5Q01):
C5Q12
Item
Does anyone help you arrange or coordinate (S.C.)’s care among the different doctors or services that (he/she) uses?
integer
C1269765 (UMLS CUI [1,1])
C0422343 (UMLS CUI [1,2])
C5Q13
Item
Does a doctor or someone in a doctor’s office provide this help arranging or coordinating (S.C.)’s care?
integer
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C0025099 (UMLS CUI [1,3])
C5Q15
Item
Is there anyone else who helps arrange or coordinate (S.C.)'s care?
integer
C1269765 (UMLS CUI [1,1])
C0422343 (UMLS CUI [1,2])
Item Group
[IF C5Q13=01, DISPLAY] Is this person a parent, guardian, other family member, friend, nurse, therapist, social worker, hospital discharge planner, case manager, or someone else? [IF C5Q13=02,77,99, THEN DISPLAY] Who does provide help arranging or coordinating [S.C.]'s care? A parent, guardian, other family member, friend, nurse, therapist, social worker, hospital discharge planner, case manager, or someone else?
C0422343 (UMLS CUI-1)
C1269765 (UMLS CUI-2)
C5Q16_1
Item
PARENT
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C0030551 (UMLS CUI [1,3])
C5Q16_2
Item
GUARDIAN
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C1274041 (UMLS CUI [1,3])
C5Q16_3
Item
OTHER FAMILY MEMBER
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C3845474 (UMLS CUI [1,3])
C5Q16_4
Item
FRIEND
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C0079382 (UMLS CUI [1,3])
C5Q16_5
Item
NURSE
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C0028661 (UMLS CUI [1,3])
C5Q16_6
Item
THERAPIST
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C0871525 (UMLS CUI [1,3])
C5Q16_7
Item
SOCIAL WORKER
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C0037444 (UMLS CUI [1,3])
C5Q16_8
Item
HOSPITAL DISCHARGE PLANNER
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C0374894 (UMLS CUI [1,3])
C5Q16_9
Item
CASE MANAGER
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C0687694 (UMLS CUI [1,3])
C5Q16_10
Item
SOMEONE AT CHILD'S SCHOOL
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C0036375 (UMLS CUI [1,3])
C0599987 (UMLS CUI [1,4])
C5Q16_11
Item
SOMEONE ELSE
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C0027361 (UMLS CUI [1,3])
C5Q16_77
Item
DON'T KNOW DON'T KNOW
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C3840856 (UMLS CUI [1,3])
C5Q16_99
Item
REFUSED
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C3844811 (UMLS CUI [1,3])
Item Group
If child received two or more of the following services in the past 12 months (questions K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, and C5Q01):
C5Q17
Item
(During the past 12 months/ Since (his/her) birth), have you felt that you could have used extra help arranging or coordinating (S.C.)’s care among these different health care providers or services?
integer
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C0205172 (UMLS CUI [1,3])
C3843288 (UMLS CUI [1,4])
C5Q09
Item
(During the past 12 months/ Since (his/her) birth), how often did you get as much help as you wanted with arranging or coordinating (S.C.)’s care? Would you say never, sometimes, or usually?
integer
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C0871208 (UMLS CUI [1,3])
C5Q10
Item
Overall, are you very satisfied, somewhat satisfied, somewhat dissatisfied, or very dissatisfied with the communication among (S.C.)’s doctors and other health care providers?
integer
C0242428 (UMLS CUI [1,1])
C0009452 (UMLS CUI [1,2])
C5Q05
Item
Do (S.C.)’s doctors or other health care providers need to communicate with (his/her) school, early intervention program, child care providers, vocational education or rehabilitation program?
integer
C0031831 (UMLS CUI [1,1])
C1705415 (UMLS CUI [1,2])
C0018747 (UMLS CUI [1,3])
C5Q06
Item
Overall, are you very satisfied, somewhat satisfied, somewhat dissatisfied, or very dissatisfied with that communication?
integer
C0242428 (UMLS CUI [1,1])
C0009452 (UMLS CUI [1,2])
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