Item
1. Do you have one or more persons you think of as this child’s personal doctor or nurse?
text
C0031198 (UMLS CUI [1,1])
C0018724 (UMLS CUI [1,2])
Code List
1. Do you have one or more persons you think of as this child’s personal doctor or nurse?
CL Item
Yes, one person (1)
CL Item
Yes, more than one person (2)
Item
2. DURING THE PAST 12 MONTHS, did this child need a referral to see any doctors or receive any services?
text
C0034927 (UMLS CUI [1,1])
C0018747 (UMLS CUI [1,2])
Code List
2. DURING THE PAST 12 MONTHS, did this child need a referral to see any doctors or receive any services?
CL Item
No ➔ SKIP to question D4 (2)
Item
3. If yes, how much of a problem was it to get referrals?
text
C0332218 (UMLS CUI [1,1])
C0034927 (UMLS CUI [1,2])
C0018747 (UMLS CUI [1,3])
Code List
3. If yes, how much of a problem was it to get referrals?
CL Item
Small problem (2)
CL Item
Not a problem (3)
Item
4a. DURING THE PAST 12 MONTHS, how often did this child’s doctors or other health care providers: Spend enough time with this child?
text
C0018724 (UMLS CUI [1])
C3668983 (UMLS CUI [2])
Code List
4a. DURING THE PAST 12 MONTHS, how often did this child’s doctors or other health care providers: Spend enough time with this child?
Item
4b. DURING THE PAST 12 MONTHS, how often did this child’s doctors or other health care providers: Listen carefully to you?
text
C0018724 (UMLS CUI [1])
C0004268 (UMLS CUI [2])
Code List
4b. DURING THE PAST 12 MONTHS, how often did this child’s doctors or other health care providers: Listen carefully to you?
Item
4c. DURING THE PAST 12 MONTHS, how often did this child’s doctors or other health care providers: Show sensitivity to your family’s values and customs?
text
C0018724 (UMLS CUI [1])
C0312418 (UMLS CUI [2])
Code List
4c. DURING THE PAST 12 MONTHS, how often did this child’s doctors or other health care providers: Show sensitivity to your family’s values and customs?
Item
4d. DURING THE PAST 12 MONTHS, how often did this child’s doctors or other health care providers: Provide the specific information you needed concerning this child?
text
C0018724 (UMLS CUI [1])
C0514892 (UMLS CUI [2])
Code List
4d. DURING THE PAST 12 MONTHS, how often did this child’s doctors or other health care providers: Provide the specific information you needed concerning this child?
Item
4e. DURING THE PAST 12 MONTHS, how often did this child’s doctors or other health care providers: Help you feel like a partner in this child’s care?
text
C0018724 (UMLS CUI [1])
C3887537 (UMLS CUI [2])
Code List
4e. DURING THE PAST 12 MONTHS, how often did this child’s doctors or other health care providers: Help you feel like a partner in this child’s care?
questions health service
Item
5. DURING THE PAST 12 MONTHS, were any decisions needed about this child’s health care services or treatment, such as whether to start or stop a prescription or therapy services, get a referral to a specialist, or have a medical procedure?
boolean
C1522634 (UMLS CUI [1,1])
C0018747 (UMLS CUI [1,2])
Item
6a. If yes, DURING THE PAST 12 MONTHS, how often did this child’s doctors or other health care providers: Discuss with you the range of options to consider for his or her health care or treatment?
text
C0018724 (UMLS CUI [1])
C0510365 (UMLS CUI [2])
Code List
6a. If yes, DURING THE PAST 12 MONTHS, how often did this child’s doctors or other health care providers: Discuss with you the range of options to consider for his or her health care or treatment?
Item
6b. If yes, DURING THE PAST 12 MONTHS, how often did this child’s doctors or other health care providers: Make it easy for you to raise concerns or disagree with recommendations for this child’s health care?
text
C0018724 (UMLS CUI [1])
C0510365 (UMLS CUI [2,1])
C3641828 (UMLS CUI [2,2])
Code List
6b. If yes, DURING THE PAST 12 MONTHS, how often did this child’s doctors or other health care providers: Make it easy for you to raise concerns or disagree with recommendations for this child’s health care?
Item
6c. If yes, DURING THE PAST 12 MONTHS, how often did this child’s doctors or other health care providers: work with you to decide together which health care and treatment choices would be best for this child?
text
C0018724 (UMLS CUI [1])
C0510365 (UMLS CUI [2,1])
C3641827 (UMLS CUI [2,2])
Code List
6c. If yes, DURING THE PAST 12 MONTHS, how often did this child’s doctors or other health care providers: work with you to decide together which health care and treatment choices would be best for this child?
Item
7. Does anyone help you arrange or coordinate this child's care among the different doctors or services that this child uses?
text
C0018747 (UMLS CUI [1,1])
C0700114 (UMLS CUI [1,2])
Code List
7. Does anyone help you arrange or coordinate this child's care among the different doctors or services that this child uses?
CL Item
Did not see more than one health care provider in PAST 12 MONTHS ➔ SKIP to question D11 (3)
health services Coordinated Assisting with activity
Item
8. DURING THE PAST 12 MONTHS, have you felt that you could have used extra help arranging or coordinating this child’s care among the different health care providers or services?
boolean
C0018747 (UMLS CUI [1,1])
C0700114 (UMLS CUI [1,2])
C0557036 (UMLS CUI [1,3])
Item
9. If yes, DURING THE PAST 12 MONTHS, how often did you get as much help as you wanted with arranging or coordinating this child’s health care?
text
C0439603 (UMLS CUI [1,1])
C0018747 (UMLS CUI [1,2])
C0700114 (UMLS CUI [1,3])
C0557036 (UMLS CUI [1,4])
Code List
9. If yes, DURING THE PAST 12 MONTHS, how often did you get as much help as you wanted with arranging or coordinating this child’s health care?
Item
10. Overall, how satisfied are you with the communication among this child’s doctors and other health care providers?
text
C0242428 (UMLS CUI [1,1])
C0018724 (UMLS CUI [1,2])
C0009452 (UMLS CUI [1,3])
Code List
10. Overall, how satisfied are you with the communication among this child’s doctors and other health care providers?
CL Item
Very satisfied (1)
CL Item
Somewhat satisfied (2)
CL Item
Somewhat dissatisfied (3)
CL Item
Very dissatisfied (4)
Item
11. DURING THE PAST 12 MONTHS, did this child’s health care provider communicate with the child’s school, child care provider, or special education program?
text
C0018724 (UMLS CUI [1,1])
C0566001 (UMLS CUI [1,2])
C0036375 (UMLS CUI [1,3])
C0031831 (UMLS CUI [1,4])
C1161268 (UMLS CUI [1,5])
Code List
11. DURING THE PAST 12 MONTHS, did this child’s health care provider communicate with the child’s school, child care provider, or special education program?
CL Item
No ➔ SKIP to question E1 (2)
CL Item
Did not need health care (3)
CL Item
provider to communicate (provider to communicate)
CL Item
with these providers ➔ SKIP to question E1 (with these providers ➔ SKIP to question E1)
Item
12. If yes, overall, how satisfied are you with the health care provider’s communication with the school, child care provider, or special education program?
text
C0242428 (UMLS CUI [1,1])
C0018724 (UMLS CUI [1,2])
C0566001 (UMLS CUI [1,3])
C0036375 (UMLS CUI [1,4])
C0031831 (UMLS CUI [1,5])
C1161268 (UMLS CUI [1,6])
Code List
12. If yes, overall, how satisfied are you with the health care provider’s communication with the school, child care provider, or special education program?
CL Item
Very satisfied (1)
CL Item
Somewhat satisfied (2)
CL Item
Somewhat dissatisfied (3)
CL Item
Very dissatisfied (4)