Item
At the first meeting before the start of the therapy the patient or relatives knew who the contact person was for further contact
integer
C0337611 (UMLS CUI [1])
Code List
At the first meeting before the start of the therapy the patient or relatives knew who the contact person was for further contact
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
At the first meeting before the start of the therapy the contact person had sufficient time for the patient or relatives
integer
C0040223 (UMLS CUI [1,1])
C0205410 (UMLS CUI [1,2])
Code List
At the first meeting before the start of the therapy the contact person had sufficient time for the patient or relatives
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
At the first meeting before the start of the therapy the patient or relatives received understandable answers to their questions
integer
C1822370 (UMLS CUI [1])
Code List
At the first meeting before the start of the therapy the patient or relatives received understandable answers to their questions
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
at the beginning of the assistance the contact person was well prepared for the patient or relatives
integer
C0439659 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
C0337611 (UMLS CUI [2,1])
C1998726 (UMLS CUI [2,2])
Code List
at the beginning of the assistance the contact person was well prepared for the patient or relatives
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
at the beginning of the assistance the staff had sufficient time for the patient or relatives
integer
C0439659 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
C0040223 (UMLS CUI [2,1])
C0205410 (UMLS CUI [2,2])
Code List
at the beginning of the assistance the staff had sufficient time for the patient or relatives
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
at the beginning of the assistance the staff explained the patient or relatives everything (regarding formalities, the housing facility and the daily routine)
integer
C0439659 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
C0681841 (UMLS CUI [2])
Code List
at the beginning of the assistance the staff explained the patient or relatives everything (regarding formalities, the housing facility and the daily routine)
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
the patient's physical pain was treated competently
integer
C0030193 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
C0086035 (UMLS CUI [1,3])
Code List
the patient's physical pain was treated competently
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
other physical issues (e.g. nausea, emesis, dyspnea) were treated competently
integer
C0683323 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
C0086035 (UMLS CUI [1,4])
Code List
other physical issues (e.g. nausea, emesis, dyspnea) were treated competently
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
The patient or relatives were understandably and sufficiently informed about therapy options (chances and limits, side effects)
integer
C0510365 (UMLS CUI [1])
Code List
The patient or relatives were understandably and sufficiently informed about therapy options (chances and limits, side effects)
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
The patient or relatives were understandably and sufficiently informed about nursing procedures
integer
C0204636 (UMLS CUI [1])
Code List
The patient or relatives were understandably and sufficiently informed about nursing procedures
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
when needed the doctors had sufficient time
integer
C1710470 (UMLS CUI [1,1])
C0040223 (UMLS CUI [1,2])
C0205410 (UMLS CUI [1,3])
Code List
when needed the doctors had sufficient time
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
when needed the nurses had sufficient time
integer
C0028661 (UMLS CUI [1,1])
C0040223 (UMLS CUI [1,2])
C0205410 (UMLS CUI [1,3])
Code List
when needed the nurses had sufficient time
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
when needed the other therapists (psychological therapists, physical therapists) had sufficient time
integer
C0871525 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0040223 (UMLS CUI [1,3])
C0205410 (UMLS CUI [1,4])
Code List
when needed the other therapists (psychological therapists, physical therapists) had sufficient time
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
when needed voluntary workers had sufficient time
integer
C0042960 (UMLS CUI [1,1])
C0040223 (UMLS CUI [1,2])
C0205410 (UMLS CUI [1,3])
Code List
when needed voluntary workers had sufficient time
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
the doctors were competent in supporting or treating the patient
integer
C0031831 (UMLS CUI [1,1])
C0870520 (UMLS CUI [1,2])
Code List
the doctors were competent in supporting or treating the patient
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
the nurses were competent in supporting or treating the patient
integer
C0028661 (UMLS CUI [1,1])
C0870520 (UMLS CUI [1,2])
Code List
the nurses were competent in supporting or treating the patient
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
the other therapists (psychological therapists, physical therapist) were competent in supporting or treating the patient
integer
C0871525 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0870520 (UMLS CUI [1,3])
Code List
the other therapists (psychological therapists, physical therapist) were competent in supporting or treating the patient
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
the voluntary workers were competent in supporting or treating the patient
integer
C0042960 (UMLS CUI [1,1])
C0870520 (UMLS CUI [1,2])
Code List
the voluntary workers were competent in supporting or treating the patient
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
the patient or relatives received helpful support in mentally difficult times, in questions about the meaning of life/suffering/death, in spiritual questions
integer
C3693635 (UMLS CUI [1,1])
C0150355 (UMLS CUI [1,2])
Code List
the patient or relatives received helpful support in mentally difficult times, in questions about the meaning of life/suffering/death, in spiritual questions
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
The patient's needs were taken care of, e.g. requests for food, requests for individual daily routine (wake-up-times, meal times), decisions regarding the therapy and/or visiting hours
integer
C0686904 (UMLS CUI [1])
C0016452 (UMLS CUI [2])
C0562339 (UMLS CUI [3])
C0679006 (UMLS CUI [4,1])
C0087111 (UMLS CUI [4,2])
C1547409 (UMLS CUI [5])
Code List
The patient's needs were taken care of, e.g. requests for food, requests for individual daily routine (wake-up-times, meal times), decisions regarding the therapy and/or visiting hours
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
Relatives were informed about the patient's imminent death early enough so that they were not surprised by it
integer
C1306577 (UMLS CUI [1,1])
C1533716 (UMLS CUI [1,2])
C1279919 (UMLS CUI [1,3])
Code List
Relatives were informed about the patient's imminent death early enough so that they were not surprised by it
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
the patient was treated with dignity after his/her death
integer
C0011070 (UMLS CUI [1,1])
C0001758 (UMLS CUI [1,2])
Code List
the patient was treated with dignity after his/her death
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
Relatives had enough time to bid farewell
integer
C0040223 (UMLS CUI [1])
Code List
Relatives had enough time to bid farewell
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
Relatives had sufficient mental support after the patient's death
integer
C3693635 (UMLS CUI [1,1])
C1306577 (UMLS CUI [1,2])
Code List
Relatives had sufficient mental support after the patient's death
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
Relatives received information about further support
integer
C1533716 (UMLS CUI [1,1])
C0344211 (UMLS CUI [1,2])
Code List
Relatives received information about further support
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
Relatives felt comforted during the time following the patient's death
integer
C1331418 (UMLS CUI [1])
Code List
Relatives felt comforted during the time following the patient's death
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
satisfaction assessment
Item
What helped the patient/relatives most or what liked they most?
text
C0242428 (UMLS CUI [1])