Item
specialized ambulatory palliative care request
integer
Code List
specialized ambulatory palliative care request
CL Item
additional partial care (3)
Item
Agreement and submitted form
integer
C0680240 (UMLS CUI [1,1])
C1515023 (UMLS CUI [1,2])
Code List
Agreement and submitted form
CL Item
health care proxy (2)
CL Item
caregiver document (3)
Item
Care level
integer
C1547668 (UMLS CUI [1])
Main diagnosis and other diagnoses or problems
Item
Main diagnosis and other diagnoses or problems with ICD-10 Code
integer
C0332137 (UMLS CUI [1])
C0011900 (UMLS CUI [2])
C0870733 (UMLS CUI [3])
Main diagnosis and other diagnoses/problems
Item
Main diagnosis and other diagnoses/problems
text
C0332137 (UMLS CUI [1])
C0011900 (UMLS CUI [2])
Date of diagnosis
Item
Date of diagnosis (approximately)
date
C2316983 (UMLS CUI [1])
Item
Metastases
integer
C0027627 (UMLS CUI [1])
CL Item
Other location, please specify: (5)
Other location of metastases
Item
Other location of metastases
text
C0027627 (UMLS CUI [1,1])
C0450429 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item
Previous treatment / assistance
integer
C0039798 (UMLS CUI [1,1])
C0025070 (UMLS CUI [1,2])
C0205156 (UMLS CUI [1,3])
Code List
Previous treatment / assistance
CL Item
palliative ward (1)
CL Item
hospice (inpatient) (2)
CL Item
hospital (other ward) (3)
CL Item
consulting service (5)
CL Item
general practitioner (6)
CL Item
outpatient care (7)
CL Item
doctor for palliative care (8)
CL Item
palliative care (9)
CL Item
specialized ambulatory pallitiave care team (10)
CL Item
other, please specify: (11)
Item
ECOG status
integer
C1520224 (UMLS CUI [1])
CL Item
0 Fully active, able to carry on all pre-disease performance without restriction (1)
CL Item
1 Restricted in physically strenuous activity but ambulatory and able to carry out work of a light or sedentary nature, e.g., light house work, office work (2)
CL Item
2 Ambulatory and capable of all selfcare but unable to carry out any work activities; up and about more than 50% of waking hours (3)
CL Item
3 Capable of only limited selfcare; confined to bed or chair more than 50% of waking hours (4)
CL Item
4 Completely disabled; cannot carry on any selfcare; totally confined to bed or chair (5)
Barthel Index
Item
Barthel Index
integer
C0451019 (UMLS CUI [1])
Date of collection of the patient's medical issues
Item
Date of collection of the patient's medical issues
date
C1516698 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0033213 (UMLS CUI [2,1])
C0205476 (UMLS CUI [2,2])
Item
Pain
integer
C0030193 (UMLS CUI [1])
Item
Nausea
integer
C0027497 (UMLS CUI [1])
Item
Emesis
integer
C0042963 (UMLS CUI [1])
Item
Dyspnea
integer
C0013404 (UMLS CUI [1])
Item
Constipation
integer
C0009806 (UMLS CUI [1])
Item
Weakness
integer
C3714552 (UMLS CUI [1])
Item
Loss of appetite
integer
C1971624 (UMLS CUI [1])
Code List
Loss of appetite
Item
Fatigue
integer
C0015672 (UMLS CUI [1])
Item
Care issues due to lesions/pressure ulcers
integer
C0017313 (UMLS CUI [1,1])
C0033213 (UMLS CUI [1,2])
C0221198 (UMLS CUI [2])
C0011127 (UMLS CUI [3])
Code List
Care issues due to lesions/pressure ulcers
Item
Need for assistance for activities of daily living
integer
C0476651 (UMLS CUI [1,1])
C0001288 (UMLS CUI [1,2])
Code List
Need for assistance for activities of daily living
Item
Depressed mood
integer
C0344315 (UMLS CUI [1])
Item
Anxiety
integer
C0003467 (UMLS CUI [1])
Item
Stress
integer
C0038435 (UMLS CUI [1])
Item
Disorientation, confusion
integer
C0233407 (UMLS CUI [1])
C0009676 (UMLS CUI [2])
Code List
Disorientation, confusion
Item
Issues organizing care
integer
C0033213 (UMLS CUI [1,1])
C1822380 (UMLS CUI [1,2])
Code List
Issues organizing care
Item
Overstrain of family or environment
integer
Code List
Overstrain of family or environment
Other issues
Item
Other issues
text
C0033213 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item
Severity of other issue
integer
C0441982 (UMLS CUI [1])
Code List
Severity of other issue
Comments
Item
Comments
text
C0947611 (UMLS CUI [1])
Reason for visit, treatment goal
Item
What is the reason for the visit, what is the aim of this treatment?
text
C1704447 (UMLS CUI [1])
C0679840 (UMLS CUI [2])
Non-opioids
Item
Non-opioids
boolean
C3863698 (UMLS CUI [1])
Opioids WHO level 2
Item
Opioids WHO level 2
boolean
C0242402 (UMLS CUI [1])
Opioids WHO level 3
Item
Opioids WHO level 3
boolean
C0242402 (UMLS CUI [1])
Adjuvant analgesics
Item
Adjuvant analgesics
boolean
C1510809 (UMLS CUI [1])
Corticosteroids
Item
Corticosteroids
boolean
C0001617 (UMLS CUI [1])
Antidepressants
Item
Antidepressants
boolean
C0003289 (UMLS CUI [1])
Antiemetics
Item
Antiemetics
boolean
C0003297 (UMLS CUI [1])
Neuroleptics
Item
Neuroleptics
boolean
C0040615 (UMLS CUI [1])
Sedatives / Anxiolytics
Item
Sedatives / Anxiolytics
boolean
C0036557 (UMLS CUI [1])
C0040616 (UMLS CUI [2])
Stomach protector
Item
Stomach protector
boolean
C0038351 (UMLS CUI [1,1])
C0033613 (UMLS CUI [1,2])
Laxatives
Item
Laxatives
boolean
C0282090 (UMLS CUI [1])
Antibiotics
Item
Antibiotics
boolean
C0003232 (UMLS CUI [1])
Diuretics
Item
Diuretics
boolean
C0012798 (UMLS CUI [1])
Cardiaca/Antihypertensive Agents
Item
Cardiaca/Antihypertensive Agents
boolean
C0007209 (UMLS CUI [1])
C0003364 (UMLS CUI [2])
Other medication
Item
Other medication
boolean
C1115771 (UMLS CUI [1])
Other medication
Item
Other medication
text
C1115771 (UMLS CUI [1])
Item
Medication
integer
C0013227 (UMLS CUI [1])
Item
Palliative sedation
integer
C0344106 (UMLS CUI [1,1])
C1285530 (UMLS CUI [1,2])
Code List
Palliative sedation
Item
Feeding
integer
C2987508 (UMLS CUI [1])
CL Item
feeding counseling (3)
Transfusions
Item
Transfusions
boolean
C1879316 (UMLS CUI [1])
Item
Pumping system
integer
Item
Puncture or drainage
integer
C0034117 (UMLS CUI [1])
C0013103 (UMLS CUI [2])
Code List
Puncture or drainage
Item
Application or change of
integer
C0185125 (UMLS CUI [1])
C0392747 (UMLS CUI [2])
Code List
Application or change of
CL Item
Central venous catheter / port (1)
CL Item
tracheo-gastro-, uro-colo-stoma (2)
CL Item
permanent catheter / suprapubic permanent catheter / drainage tube (3)
Item
Radiotherapy
integer
C1522449 (UMLS CUI [1])
CL Item
radiological intervention (neurolysis, endoscopy etc.) (3)
Item
Care
integer
C1947933 (UMLS CUI [1])
CL Item
special positioning (due to fractures etc.) (3)
CL Item
treatment of pressure ulcer (4)
CL Item
treatment of lesions (5)
CL Item
rectal abstergent treatment (6)
Item
Maintenance of catheters
integer
C0024501 (UMLS CUI [1,1])
C0085590 (UMLS CUI [1,2])
Code List
Maintenance of catheters
CL Item
central venous catheter, port (1)
CL Item
tracheo,- gastro,- uro,- colo-stoma (2)
CL Item
irrigation of permanent catheter/drainage probe / suprapubic permanent catheter (3)
Item
Tumortherapy i.v. ("chemotherapy")
integer
C0920425 (UMLS CUI [1])
Code List
Tumortherapy i.v. ("chemotherapy")
CL Item
other pharmaceutical tumor therapy (p.o., i.th.) (3)
Item
Physiotherapy
integer
C0949766 (UMLS CUI [1])
CL Item
heat/cold-treatment (2)
CL Item
edema treatment, manual lymphatic drainage (3)
CL Item
massages, embrocation (4)
CL Item
breathing therapy (5)
Item
Psychotherapy
integer
C0033968 (UMLS CUI [1])
CL Item
intervention in a crisis (1)
CL Item
supportive short-time-therapy, training (2)
CL Item
creative procedures (art, music, writing etc.) (3)
CL Item
practicing procedures (relaxation, hypnosis...) (4)
CL Item
couple-/family-counseling (relatives/patient and relatives) (5)
Surgical procedure
Item
Surgical procedure (surgery, stenting, dilation etc.)
boolean
C0543467 (UMLS CUI [1])
Diagnostic procedures
Item
Diagnostic procedures (ct, mri, endoscopy etc.)
boolean
C0430022 (UMLS CUI [1])
Item
Counseling
integer
C0010210 (UMLS CUI [1])
CL Item
for organizing final arrangements (1)
CL Item
for living will, authorization (2)
CL Item
for mediation of community service (3)
CL Item
for request for public authorities, insurances etc. (4)
CL Item
for the suggestion of legal assistance (5)
Organization of following treatment
Item
Organization of following treatment
boolean
C0039798 (UMLS CUI [1,1])
C0332282 (UMLS CUI [1,2])
C1300196 (UMLS CUI [1,3])
assistance for (grieving) relatives
Item
assistance for (grieving) relatives
boolean
C0018896 (UMLS CUI [1,1])
C0080103 (UMLS CUI [1,2])
C0018235 (UMLS CUI [1,3])
Item
pastoral care
integer
C0030643 (UMLS CUI [1])
Other procedures
Item
Other procedures
text
C0393107 (UMLS CUI [1])
Which issue was solved especially well?
Item
Which issue was solved especially well?
text
C0033213 (UMLS CUI [1])
Which issue could not be solved sufficiently?
Item
Which issue could not be solved sufficiently?
text
C0033213 (UMLS CUI [1])
Item
Who filled out the file?
integer
C3273494 (UMLS CUI [1])
Code List
Who filled out the file?
CL Item
ambulatory hospice (3)
CL Item
psychologic department (4)
CL Item
social worker (5)
Other, who filled out the form
Item
Other, who filled out the form
text
C3273494 (UMLS CUI [1])
Date of discharge/change in assistance/death
Item
Date of discharge/change in assistance/death
date
C2361123 (UMLS CUI [1])
C0011008 (UMLS CUI [2,1])
C0443172 (UMLS CUI [2,2])
C0025070 (UMLS CUI [2,3])
C1148348 (UMLS CUI [3])
Item
End of therapy
integer
C0087111 (UMLS CUI [1,1])
C0444930 (UMLS CUI [1,2])
CL Item
transfer/discharge (2)
CL Item
end of documentation (3)
Other end of therapy
Item
Other end of therapy
text
C0087111 (UMLS CUI [1,1])
C0444930 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item
Discharge to/ treatment ongoing in
integer
C0030685 (UMLS CUI [1])
C0087111 (UMLS CUI [2,1])
C0549178 (UMLS CUI [2,2])
Code List
Discharge to/ treatment ongoing in
CL Item
palliative ward (1)
CL Item
hospice (inpatient) (2)
CL Item
hospital (other ward) (3)
CL Item
consultation service (5)
CL Item
ambulatory care (7)
CL Item
doctor for palliative care (8)
CL Item
palliative care service (9)
CL Item
palliative care team (10)
Other discharge to / ongoing treatment in
Item
Other discharge to / ongoing treatment in
text
C0030685 (UMLS CUI [1])
C0087111 (UMLS CUI [2,1])
C0549178 (UMLS CUI [2,2])
Item
Place of death
integer
C0421611 (UMLS CUI [1])
CL Item
palliative ward (4)
Item
final evaluation of the team's satisfaction with the medical assistance for the entire treatment
integer
C0220825 (UMLS CUI [1])
C0242428 (UMLS CUI [2])
C0087111 (UMLS CUI [3,1])
C0439751 (UMLS CUI [3,2])
Code List
final evaluation of the team's satisfaction with the medical assistance for the entire treatment
Item
final evaluation of the team's satisfaction with the medical assistance for the final stage (for patients who passed away)
integer
C0220825 (UMLS CUI [1])
C0242428 (UMLS CUI [2])
C0205088 (UMLS CUI [3])
Code List
final evaluation of the team's satisfaction with the medical assistance for the final stage (for patients who passed away)